2015-05-21_11.44.47

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Come aboard our ship as I steer it through the storm of our lives. Our 14 year old son was diagnosed with Hydrocephalus and Adrenal Insufficiency in May of 2014 and he was diagnosed with inoperable metastasized Pilomyxoid Astrocytoma Brain Cancer in June of 2014. Our life was capsized at that moment. Almost a year of agonizing pain and a misdiagnosis lead us to this. We began chemo in July of 2014. He completed 15 months of chemotherapy treatment. He has MRIs every six months and will for a very long time. He may never be cancer free as his tumors are inoperable and his other illness will be life long as well but, hope is our fuel. His pain is now managed by a team of docs and his cancer and other diseases too. So I write to cleanse my mind and my spirit. To open my heart and soul to the cyber world about my daily life, the good bad and the ugly and the beauty. Bold As Love!